National & Online FASD & FAS Resources

General Information on FASD & FAS

• http://www.cdc.gov/ncbddd/fas The website for the Centers for Disease Control and Prevention (CDC), Fetal Alcohol Syndrome site. Also available from the CDC is Women & Alcohol information at http://www.cdc.gov/Features/WomenAndAlcohol/
• http://come-over.to/FAS/ For "everything you need to know about Fetal Alcohol Spectrum Disorders." Featuring the Bill Dubovsky Memorial FASD Lending Library
• http://depts.washington.edu/fadu/ Website for the Fetal Alcohol and Drug Unit at the University of Washington School of Medicine. The director there is Ann Streissguth who has written countless articles and books on the subject of FASD.
• http://fasdcenter.samhsa.gov For general information about FASD, the Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence provides excellent information on their website.
• http://www.fasstar.com Website for Come-Over-To FAS Enterprises, contains: support, training, advocacy, and many printed resources. Family resources posters, brochures, presentations, and workshops for prevention and intervention.
• http://www.fasworld.com Website for FASworld, which is an international alliance of parents and professionals. Has information on FASD and on FAS Day, September 9th.
• http://www.fetalalcoholsyndrome.org Website, founded by birth mothers of children with fetal alcohol syndrome, FAS*FRI provides training to families and professionals. "F.A.S. TIMES" is a quarterly newsletter that offers both scientific data and parent-to-parent suggestions.
• http://www.fasiceberg.org A quarterly international educational newsletter on FASD.
• http://www.modimes.org Website for the March of Dimes whose mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality.
• http://www.nofas.org The website for the National Organization on Fetal Alcohol Syndrome, located in Washington, DC.

Educational Advocacy

• http://www.thearc.org Website of The Arc of the United States. Has numerous materials about fetal alcohol syndrome as well as other developmental disabilities. Has information to download or you can send for FASD kits and self-advocacy materials.
• http://www.wrightslaw.com Website for Wrightslaw, where parents, advocates, educators and attorneys come for accurate, up-to-date information about special education law and advocacy for children with disabilities

  FASD Education

  • http://www.do2learn.com Website for Do2Learn and contains educational resources for special needs children like schedule boards, aids for teaching math and a "FASD Toolbox" for teachers.
  • http://www.education.gov.ab.ca/fasd/ Website of the government of Alberta, Canada that has workbooks and manuals about teaching to students with FASD available to download.
  • http://pbis.org/main.htm Website for the National Technical Assistance Center on Positive Behavioral Interventions and Supports (PBIS). It was established to address the behavioral and discipline systems needed for successful learning and social development of students. The Center provides capacity-building information and technical support about behavioral systems to assist states and districts in the design of effective schools.
  • http://www.workshopsinc.com/manual/index.html/ Website for Like Skills for Vocation Success, a website for educators, counselors, job coaches and other professionals working to increase the employability of people with disabilities.

  Birth Mother Support

  • http://www.nofas.org/coh/default.aspx The website for the Circle of Hope (COH), which is a network of women in recovery from alcohol and drug addiction, who have used during pregnancy and may have children with FASD. The Circle unites women and families to assist in the process of recovery, and provide mentoring support needed to get through the process of grief

  FASD Diagnosis

  • http://depts.washington.edu/fasdpn/ Website for the Fetal Alcohol Syndrome Diagnostic & Prevention Network at the University of Washington in Seattle

  E-Groups & List Serves

  • http://www.acbr.com/fas FASLINK is the largest FASD support group with over 300 members.
  • http://groups.yahoo.com/group/FAShomEd FAS Home Educators (FASHOMED) is for parents who home school their children with FASD.
  • http://come-over.to/FAS/Olderfas.htm OlderFAS is for parents of teens/adults with FASD

  Miscellaneous

  • http://www.childrenshc.org/cmo/ Children’s Hospital and Clinics has created the "Children's Medical Organizer.” It is a secure online website that keeps all of a child's appointments and providers in one place. Parents can log in all medical information on their child.
  • http://www.coping.org Website that has tools for parents of children with special needs. Contains a huge reference library of manuals to provide ideas to help parents and professionals work with special needs children.
  • http://www.fascets.org Website for a non-profit group started by parents and a grandparent, which consults with families and trains professionals.
  • http://www.fasday.com Website with information on International FASD Awareness Day, September 9th.
  • http://www.joyswaldorfdolls.com Website where you can order a doll that gives calming weight.
  • http://resilnet.uiuc.edu/library.html Website for The ResilienceNet Virtual Library. A collection of articles from the University of Illinois at Urbana-Champaign about family resilience.
  • http://www.weightedblanket.net Website where you can order custom & pre-made weighted blankets and lap pads.