Local and National Resources

Browse this list of local Minnesota and national resources on Fetal Alcohol Spectrum Disorders (FASD).

General Information

  • Minnesota Children with Special Help Needs
    Minnesota Children with Special Health Needs has developed a series of health condition fact sheets for some of the most common birth defects. The fact sheets provide information such as a general description of the condition, prevalence, common associated conditions, short and long-term treatment and outcomes, common complications and implications for children’s development.

Minnesota Education Advocacy

  • Arc Minnesota
    Arc Minnesota provides advocacy and support for people with developmental disabilities and their families. Also available to download is the Arc’s Family Resource Guide, which is written for families raising children with mental retardation and related developmental disabilities. It includes benefits, supports and services that might help families and individuals.
  • Children’s Home Society & Family Services
    Children’s Home Society & Family Services has a Learning Disabilities Program that promotes school success among children with learning challenges in grades K-12. Is free and confidential. Contact: Renee Brecken
  • Minnesota Disability Law Center
    Minnesota Disability Law Center provides free civil legal assistance to individuals with disabilities on legal issues that are related to their disabilities.
  • Parent Advocacy Coalition for Educational Rights Center
    PACER Center (Parent Advocacy Coalition for Educational Rights) works to secure free and appropriate public education for all children. Contact: Lucy Favorite. Also available, PACER’s school discipline guide for families, http://pacer.org/discguide.html
  • School Law Center, LLC
    The School Law Center, LLC, specializes in legal advocacy on behalf of students in a variety of civil rights areas. Contact: Amy Goetz.

Prevention

  • Minnesota Prevention Resource Center
    TheMinnesota Prevention Resource Center provides information services, publications and videos, technical assistance, learning opportunities, and newsletters to help carry out successful prevention programs in individual communities.

Minnesota Support Groups

  • Minnesota Adoption Resource Network
    MN ADOPT (Minnesota Adoption Resource Network) is dedicated to supporting and sustaining the families who adopt Minnesota Waiting Children. Information includes a listing of parent support groups statewide as well as pre- and post-adoption training, information on parenting children with special needs, and a clinical warmline program called HELP which provides free short-term therapeutic services to qualifying families in crisis including families who have adopted internationally or infant adoption.
  • Pregnancy and Postpartum Support Minnesota
    Pregnancy and Postpartum Support Minnesota is group of mental health & perinatal practitioners, service organizations, and mother volunteers offering emotional support and treatment to Minnesota families through the perinatal years. Their mission is to engage parents and professionals in promoting optimal emotional well-being during pregnancy and postpartum. Their website provides lists of Minnesota resources for new parents. For support (including ongoing peer support), contact the PPSM Helpline: 612 787-PPSM or PPSMhelpline@gmail.com.

Miscellaneous

  • Confidence Learning Center
    The Confidence Learning Center, often referred to as Camp Confidence, is a year-round center for persons with developmental disabilities. They specialize in recreation and outdoor education, and the Confidence Learning Center serves persons of all ages and abilities.
  • REM Inc.
    REM Inc. provides residential services, in-home supports and independent living and respite and crisis services. They also provide case management, advocacy, behavioral consultation and training. Contact Denise Miller and she will refer you to an office in your area, 952-922-6776.

 

National Resources

General Information on FASD

  • Centers for Disease Control and Prevention (CDC), Fetal Alcohol Syndrome Site
    The Centers for Disease Control and Prevention (CDC) Fetal Alcohol Syndrome site is also available from the CDC is Women & Alcohol Information.
  • FAS Community Resource Center
    For “everything you need to know about Fetal Alcohol Spectrum Disorders.” Featuring the Bill Dubovsky Memorial FASD Lending Library
  • University of Washington Fetal Alcohol & Drug Unit
    The director is Ann Streissguth, who has written countless articles and books on the subject of FASD.
  • Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence
    For general information about FASD, the Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence provides excellent information on their website.
  • FASSTAR Enterprises
    Come-Over-To FAS Enterprises contains support, training, advocacy, and many printed resources. Family resources posters, brochures, presentations, and workshops for prevention and intervention.
  • FASWorld
    FASWorld is an international alliance of parents and professionals, and has information on FASD and on FAS Day, September 9th.
  • FAS*FRI
    Founded by birth mothers of children with fetal alcohol syndrome, FAS*FRI provides training to families and professionals. “F.A.S. TIMES” is a quarterly newsletter that offers both scientific data and parent-to-parent suggestions.
  • Iceberg
    A quarterly international educational newsletter on FASD.
  • The March of Dimes
    March of Dimes’ mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality.
  • NOFAS
    Th National Organization on Fetal Alcohol Syndrome is located in Washington, DC.
  • FASD Interventions
    FASD Interventions offers perspectives on FASD intervention through research, news, and current events.
  • Know FASD
    Know FASD serves as an alcohol in utero knowledge base, providing information about FASD across the lifespan.
  • Edmonton and area Fetal Alcohol Network Society (EFAN)
    EFAN is a collaborative venture made up of individuals from community agencies, governmental departments and concerned citizens, which recognize the significant opportunity to achieve valuable social impacts through a grassroots partnership.

Educational Advocacy

  • The Arc
    The Arc of the United States has numerous materials about Fetal Alcohol Syndrome, as well as other developmental disabilities. It also has information to download or you can send for FASD kits and self-advocacy materials.
  • Wrightslaw
    Wrightslaw is where parents, advocates, educators and attorneys come for accurate, up-to-date information about special education law and advocacy for children with disabilities

FASD Education

  • Do2Learn
    Do2Learn contains educational resources for special needs children like schedule boards, aids for teaching math and a “FASD Toolbox” for teachers.
  • Alberta Education FASD
    The government of Alberta, Canada has workbooks and manuals about teaching to students with an FASD that are available to download.
  • PBIS
    The National Technical Assistance Center on Positive Behavioral Interventions and Supports (PBIS) was established to address the behavioral and discipline systems needed for successful learning and social development of students. The Center provides capacity-building information and technical support about behavioral systems to assist states and districts in the design of effective schools.
  • Like Skills for Vocation Success
    Like Skills for Vocation Success is a website for educators, counselors, job coaches and other professionals working to increase the employability of people with disabilities.
  • Texas Office for Prevention of Developmental Disabilities
    The Texas Office for Prevention of Developmental Disabilities is the designated state agency on the prevention of developmental disabilities. Its mission is to minimize the losses caused by preventable disabilities especially fetal alcohol spectrum disorders (FASD) and brain injury. Thus, TOPDD is minding the minds of the children of Texas!

Birth Mother Support

  • Circle of Hope (COH)
    Circle of Hope (COH) is a network of women in recovery from alcohol and drug addiction, who have used during pregnancy and may have children with an FASD. The Circle unites women and families to assist in the process of recovery, and provide mentoring support needed to get through the process of grief

Addiction & Recovery

  • Pregnant Women and Alcohol
    Addiction Center is an information hub about addiction, treatment and recovery. Its growing database of treatment center reviews aims to help those in need find the treatment option that best fits their personal needs.
  • Quit Day
    Quit smoking and breathe easy. Making a plan to quit smoking is the first step to quitting for good.
    Take the first step here, and say goodbye to cigarettes forever. There are risks and dangers of smoking during pregnancy and also smoking while breastfeeding with effects from nicotine.
  • Addiction and Pregnancy
    Pregnancy should be an exciting and empowering time in a woman’s life. Unfortunately, addiction and mental health problems can compromise a woman’s safety and well-being. There’s hope for recovery, though. Help is available for pregnant women who are suffering from addiction.
  • Addiction Resource
    Addiction Resource provides a wealth of information to help better educate people about substance abuse and motivate the ones who may be suffering to seek the support they need. One very their beneficial aspects is that Addiction Resource is not only for people seeking information or help, but also for those who want to assist in a family member or friend’s recovery but unsure how to go about it.  We also teach how to look for warning signs of addiction in case there is any suspicion.

FASD Diagnosis

E-Groups & List Serves

Miscellaneous

  • Children’s Medical Organizer
    Children’s Hospital and Clinics has created the “Children’s Medical Organizer.” It is a secure online website that keeps all of a child’s appointments and providers in one place. Parents can log in all medical information on their child.
  • Livestrong
    Website that has tools for parents of children with special needs. Contains a huge reference library of manuals to provide ideas to help parents and professionals work with special needs children.
  • FASCETS
    Website for a non-profit group started by parents and a grandparent, which consults with families and trains professionals.
  • FASD Awareness Day
    Website with information on International FASD Awareness Day, September 9th.
  • Joy’s Waldorf Dolls
  • Website where you can order a doll that gives calming weight.
  • Harkla Weighted Blanket
    Highest rated weighted blanket on Amazon, gives free shipping, lifetime guarantees, and 1% of our sales go to the University of Washington Autism Clinic. 
  • Living with FASD
    A blog by Ann Kagarise, a writer, journalist, author of The Sinful Woman, and freelance photographer diagnosed with an FASD at the age of five.
  • A Square Peg, A Round Hole
    A blog about Adrienne Ehlert Bashista, a mother of two boys; the youngest an adopted child from Russia who has pFAS, an FASD.

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Copyright © 2017 Minnesota Organization on Fetal Alcohol Syndrome | Photos by Amy Zellmer, Custom Creations Photography.

This site is provided to families and professionals as an informative site on Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Spectrum Disorder (FASD). It is not intended to replace professional medical, psychological, behavioral, legal, nutritional or educational counsel. Reference to any specific agency does not necessarily constitute or imply its endorsement, recommendation, or favoring by MOFAS.